Tuesday, October 31, 2006

Happy Halloween

Natalie attempted walking today! She had two therapists and the family to help her walk but kept at it for about 20 minutes on and off. She is not yet able to put all her weight on her feet just yet but is learning to put one foot in front of the other. Natalie enjoyed the weather today as the family wheeled her outside. She has also been speaking and answering questions as she was before her minor setback.

Natalie continues to progress and with your thoughtful prayers will only get stronger. Keep it up!!

Monday, October 30, 2006

Moving uphill

I have been told that Natalie is continuing her uphill progress and is again able to speak very softly. She is not yet talking as much as she was able to before she became sick but should be back to that point shortly. During the time Natalie was unable to speak she used a bit of sign language! I was amazed to hear that she was able to recall that process!

Natalie's therapy sessions are going well. With the exception of the past few days she is now back on track with her sessions and will continue to improve as the days move on.

I will do my best to keep you informed on her progress and know that you are all extremely anxious to hear how she is improving. Please continue to leave comments and encouraging words on the blog as they will help Natalie through the tough times ahead. Thanks, all!

Saturday, October 28, 2006

A Minor Setback

Here is another post from Natalie's father:

Natalie has had a minor setback this week, one of those things that can happen when you are in hospital for a while. She has Clostridium Difficile Colitis (known as C-diff), which is basically an infection of the intestines. This is something that can develop when you are taking antibiotics (which Nat was taking for a UTI), or you can get by contact, particularly in a hospital. It causes diarrhea, cramping and flu like symptoms, the cure is a different antibiotic.

At the beginning of the week Nat did make more progress. She wrote “Nat” on a piece of paper and drew a star when asked to. She was also making progress eating little spoonfuls of various foods and drinking orange juice through a straw, which she loved. Unfortunately after a couple of days she vomited the orange juice and as she got sicker she got very tired. Her feeding tube was then disconnected for a couple of days and she has had to miss a few of her therapies. Since she is very tired and feeling unwell she has stopped talking or communicating much, but she does still give an occasional thumbs up or down to questions. Her white blood cell count had been up, but is now back to normal, so her tube feeding was re-started this morning. Hopefully she will recover more over the weekend and will be ready to make more progress next week.

I will update you all as soon as Natalie starts feeling better and improving!

Friday, October 27, 2006

Sign the Irish Chain Quilt from overseas!

I recently received an email from the quilt master's daughter, Colleen Cappon, stating that anyone overseas that wishes to sign the quilt may do so by including a small blurb (it must fit on a 3 x 3 square) and $5 to:

Liz Cappon
14579 County Route 156
Watertown NY 13601

Please get your submissions in or postmarked by November 3rd.

Thank you!

Tuesday, October 24, 2006

Natalie's voice!

I spoke briefly with Natalie today. The first thing she told me to do was shave my beard - she told me nicely, though, by saying, "Shave, please". I asked her how she was feeling and tried to limit the time I spoke with her on the phone as to keep her energy levels up. She told me she felt ok and I let her know I would be coming to see her soon. I let her off the phone by saying I love you and goodbye and she repeated the phrase to me as well. It was remarkable being able to hear her voice. From what I've been told she sounded much stronger today. Her voice was quiet but it was not a whisper. So far her progress at Sunnyview has been wonderful!


Benefit Run Pictures


Thanks to Jess Weise for creating a page where you all can view some pictures from the benefit run! I'll post the link on the right side of the page. You can also view the pictures by clicking here

Thank you all for your patience with the lack of daily posts. I will be able to post updates more frequently now that I am back on Long Island.

Friday, October 20, 2006

Rehab Breakthroughs!

Today's Post comes straight from Dad!

Natalie has made amazing progress in the last few days, she is now much more aware and is communicating much more. We are very excited by this progress, but please bear in mind as you read the details below that I am describing Natalie’s accomplishments in her best, most alert moments. She is still in the process of emerging from her coma, though she is now significantly further along in that process. She now scores 16 out of 23 on the Coma Recovery Scale. Her response level changes somewhat from hour to hour and day to day, and she still has a long way to go, but she is now consciously participating in her rehabilitation process. Here is what she has been doing:

Natalie can distinguish between different objects, even when they are similar. When shown a hairbrush and a paintbrush she knows which is which, and will brush her hair with the hairbrush.

Natalie can perform single commands, even when they are abstract commands, such as “make a fist”, or “point at the ceiling”.

Natalie can swallow, and is learning to eat little spoonfuls of applesauce and crushed popsicle.

Natalie can talk! Her voice is mostly a very quiet whisper, and can be very hard to hear (Al has the best hearing!) but she can carry on a conversation. She usually gives a small nod or shake of the head for yes and no answers. She can tell us her full name and the full names of all of us around her, and can spell all of those names letter by letter! She knows the name of the road we live on, the name of her college and many other things.

She can count and tell us what 2 + 2 is. She has asked questions about her accident and has articulated her frustration at being in bed or in a wheelchair all the time. And she told her therapist that she does not like apple sauce!

Natalie can read! When her therapist wrote commands such as “stick out your tongue” on a piece of paper Natalie read them and followed the commands.

Natalie is working very hard to get her legs working. Her leg casts have now been split to make them removable, and she only wears them at night. Since her whole left side is very weak she cannot put much weight on her left leg. Her right leg is strong, but cannot be straightened out after being tightly bent at the knee for so long. We stretch her right leg out as much as possible every day. Once a day she goes on a “tilt table”. She is strapped to a horizontal table and it is gradually raised towards the vertical, putting her weight on her feet. She very much wants to do this, but it is very painful for her because her right leg must be stretched as hard as possible and strapped in place. Her multiple daily physical therapy sessions are also very tiring for her, and she is usually exhausted by the afternoon.

Natalie’s left arm now has three different arm and hand splints which alternate during the day, to gradually correct the tight contraction of the elbow and hand muscles. She has regained a very small amount of movement at the wrist. Her right arm and hand work very well and are amazingly strong. She can do a lot with this hand, although she is still subject to some agitated movements that are hard for her to control.

The improvements of the last few days have made a huge difference. Natalie knows who she is, where she is and why she is there. She can tell us what she is feeling, and can understand what she needs to do to continue to get better. With her determination, I am sure her therapy sessions will bring her improvements in mobility that she now longs for.

Monday, October 16, 2006

Benefit Run details

Jill Weise paints a nice picture of the benefit run for those of us who could not attend:

"The wind was alittle chilly, but the warmth of so many joined hearts and prayers was enough for all of us yesterday! There were friends, acquaintances, neighbors, co-workers, young, old, in-between, people who have experienced similar situations, and those who just wanted to contribute in some way. Everyone with one purpose: participate in a time of community togetherness in honor of Natalie and her familiy. It was something to see!

The quilt is also going to be beautiful! Many people enjoyed writing their
messages! It added so much to the day! People were just thrilled to be able
to help in some small way!

When I had mentioned earlier that God could provide us with so much more than we could ever even imagine, I didn't mean in a financial way...I meant with blessings for Nat's continued progress! However, he has done both and I have faith that he will just keep blessing all of you abundantly! I know that many people here feel blessed by the opportunity to be involved."


Thank you for filling us all in! I will post pictures of the event once I can get my hands on some.

Sunday, October 15, 2006

More updates

Nat is progressing well at Sunnyview. From what I've heard the rehab sessions are quite exhausting for Natalie but will quicken the coma emergence process. Weekends at the hospital are less work for her as she only has three half hour sessions instead of six on Saturday and is able to rest all of Sunday. Her night time medicine was adjusted as well so she is not as sleepy during the day.

Judging by the comments posted on the blog the benefit run was a huge success. I will post more details as I receive the information.

Friday, October 13, 2006

Therapy update

As I said yesterday, Natalie has begun her therapy. Her days consist of six half hour sessions - thats two half hour sessions for each therapy group. The three groups are occupational therapy, physical therapy, and speech therapy. The therapists have already commented that Natalie is doing better than they suspected she would - not surprising for those of us that know her!

Marc and Al will be driving to Watertown to pick up some furniture for the apartment and the family will be moving in on Saturday.

As far as I know the benefit run is still on for October 15th. That is this Sunday! If you will be available that day please participate in the run as I know it will be a huge help to the family!

Thank you everyone for your continuing words of encouragement, I know Natalie will be shocked at all the support she has.

Thursday, October 12, 2006

Visitors

In response to a comment posted earlier today:

I believe that visitors should hold off a few weeks on going to see Natalie and the family. The first few weeks at the rehab center are going to be very chaotic and I feel the Foulgers will need some time to settle in and absorb all the changes. I will most definitely update the blog as soon as I hear differently. Please keep reading!

Tuesday, October 10, 2006

My Visit

I drove up to see Natalie and the family on Friday, October 6th. While the family looked both emotionally and physically drained Natalie looked much better than I had remembered. At first sight I was absolutley amazed at the amount of movement she has regained. She was moving her right arm and leg with ease, scratching her nose, putting her glasses on, and putting on hats. She also makes a lot of noise suggesting that she is preparing herself to start talking again.

That first night Rebecca and I stayed in her room in order to give Tina a break. She slept for a total of 5 hours occasionally waking up in discomfort. When asked what was bothering her she would continually point to her right leg. Both legs have heavy casts on them that cover her from the heel up to just below her knees. These casts should be removed soon now that Nat has been moved to rehab.

The morning of the move was very nerveracking at first because the trip was almost postponed again. Luckily Sunnyview was eager to take her that day.

The drive took about two hours - the facility is almost 180 miles from Syracuse. We had quite the 'convoy': Rebecca, me, Al, and Paul all drove separate cars while Jane and Kai drove together as well as Ann and Marc. A total of 6 cars made the trip, two of which headed back home a few hours after arrival. Tina drove up in the ambulance and was already in the room answering medical questions about Natalie when we arrived.

I, personally, was shocked to see how nice the hospital was on the inside. It does not look like a hospital but a dormitory instead. The hallways are carpeted and Natalie's room has beautiful wood floors and two large windows for her to look out of. There are cushions on either side of the bed that have built in alarms in case Nat were to try and run off. The staff seemed very courteous and pleasant, as well. In my opinion I feel the family made the right decision in coming to Sunnyview. They, too, seemed very content with the decision.

The family is currently staying at a nearby Holiday Inn but will be moving in to an apartment 1.5 miles from the hospital! Their move-in day is Friday.

Today Natalie had her first day of rehab. Different teams came in to take notes on her status. She did not do too much physically today other than stretching but will start with her normal therapy sessions as soon as possible. Her days consist of six half hour sessions, in which Nat is visited by a variety of specialized doctors.

All in all I feel Natalie will improve quickly at this hospital. It seems the doctors will be working her very hard to regain her functionality but I can't see her anywhere else!

More updates to come!

Monday, October 09, 2006

Further complications...

This morning Natalie's pelvic incision leaked a fluid that suggested a possible infection. The family was faced with a difficult decision: whether or not to transfer to the rehab facility this morning.

Ultimately the family's decision hindered on the ability of Sunnyview's staff to be able to care for Natalie's wound had it been infected. Luckily we received news that Sunnyview Hospital has a wound specialist team on call that would be able to take care of the situation if the incision does become infected. Natalie's orthopedic surgeon, Dr. Simpson, believes the wound will heal itself as long as she receives the proper nutrition. He believed the fluid, called seroma, was a direct result of her malnutrition in the previous weeks. Since then Nat has been fed properly and is doing very well (this will help the incision from becoming severely infected).

The family will leave SUNY Upstate Medical Hospital today in a 7 car convoy on their way to Sunnyview Rehabilitation Hospital. I will leave a detailed post tomorrow of my personal opinions about Natalie's progress. In short, it is remarkable. Thank you for continuing to send all your love and prayers!

Friday, October 06, 2006

Answering questions

The address for the Sunnyview Rehabilitation Hospital is available on the website, which is linked at the right side of the blog.

1270 Belmont Avenue
Schenectady, NY 12308

Natalie will follow verbal commands on and off. She has not been squeezing hands every time she is asked to but sometimes will respond. This is no better nor worse than her ability to follow verbal commands was a few weeks after the accident, but because of the other actions she has been able to perform, improvement is definitely existent.

Thursday, October 05, 2006

Mom and Dad Posts

These are comments posted by Natalie's parents:

Many, many thanks to Nat's friends Elysia, Kelly, Meredith and Amanda for organizing the wonderful fundraiser at Daemen College, and thanks to all of the friends, faculty, staff and students who supported it. We really appreciate your generosity, but it is even more important to us that so many of you at Daemen are thinking of Natalie and supported this event so incredibly well.
Marc & Tina


Thursday October 5th
Natalie is up to the target feeding tube rate and is tolerating it well so far. The doctor's want to monitor this for at least another 24 hours before she can be transferred to rehab. Sunnyview's policy is to not take new patients from Friday-Sunday, so it looks like the transfer will be Monday.
Marc & Tina

Rehab move update

It seems Natalie has been okay with her nutrition intake, however, staff at Sunnyview would rather she moves on Monday of this coming week. As a result Nat will be in Syracuse this weekend. Of course her rehab move has been delayed a week from the initial date they were planning to send her off, but on the bright side, this will give Doctors a better chance to make certain she is stable with her feeding.

While Nat still hasn't been following commands I've been told that she was able to spin a hat around on her index finger and adjust it to fit her head!


Benefit Run Update

I've been told that there will be an Irish Chain Quilt put together for Nat. There will be a separate table set up at the benefit run where people can donate $5 to put a message on one of the 400 squares. All proceeds will go towards Natalie's rehabilitation.

Just another way for us all to show that we care; great idea!!

Tuesday, October 03, 2006

Feeding tube status

Doctors performed the procedure to reposition Natalie's feeding tube yesterday. The procedure went well and so far, today, there haven't been any changes. Hoping that the tube stays put in her intestine and Nurses are able to continue to provide nourishment, Nat's new scheduled move date is Thursday. I will let you all know as soon as the move is closer to a reality.

Natalie's friends from Daemen College raised funds to aid in her recovery. I want to thank you all for putting this fundraiser together. The family is very appreciative of all the support they've received thus far!

Sunday, October 01, 2006

Minor Setback

Today's post is from Natalie's father:

"Yesterday Nat vomited several times, so doctors immediately stopped her tube feeding for a while. When they tried to restart it last night she vomited again, and did so again later in the night. This morning she was still retching, so her stomach was x-rayed again. It turns out that the feeding tube had completely pulled out of position somehow, and the end of it is now all the way up in her throat, which is causing her to continue to gag even though the feed is off. Tomorrow doctors will use a small internal camera to try to properly replace her feeding tube past the blockage and into her intestine again. If this works she could be ready for transfer to rehab within another 24 hours. If it does not work they will likely perform another procedure where a feeding tube is brought through a new opening directly below the blockage. Nat would need about 2 days to recover from that procedure, so she could still go to rehab later this week."

Thanks for the update, Marc!